Slow progress.

Recovery continues at a snails pace. A little less oxygen a day.... a little more at night (which is normal).... the treatments continue, although the plan is to taper off the steroids gradually which is so good (side effects include the classic little moon face, which he hates, and angry grumps, which I hate). We are still under infection control due to his paraflu, so confined to the one room. He is only allowed out for physio, for which he needs to get masked up, wheeled to the garden, where he walks as much as he can (not a lot) afterwhich he coughs so much he is sick. 

Right now, Isaac is sick in a very visible way which he is not used to; sitting pale, wheelchaired, coughing, masked, holding an oxygen canister will do that. CF is generally quite an invisible disease (so much so that sufferers are often berated for parking in disabled bays - sadly lots of people with CF are as sick as Isaac is right now all the time, they are breathing-disabled, which pretty much totally sucks).

Each day, no... multiple times a day, I remind him that he IS getting better, he WILL get off O2, he SHALL get home.... I'm not sure he always believes me, but I'll always be his biggest, loudest and most annoying cheerleader. Someone bring me some PomPoms! 

For all those in hospital, like us, clock watching as the minutes tick by, have some Patti positivity x