Finally, a surgery date.

Our partially broken but wonderful NHS have come through with a maybe date for Isaac’s sinus surgery, for which he has been waiting for many months. While he waits, his bacterial infections play volley ball between his lungs and sinuses, and his QOL (quality of life) decreases massively, with headache after headache. I cried with joy on the phone to the admissions team....even though this is not a confirmed date (two weeks time), it is hope. More soon x x x 

A lovely tree

Just back from a weekend at the Suffolk coast, our home from home. I’ve not been well myself lately, so a very welcome getaway. Isaac stayed home, but the girls and Anouk’s boyfriend joined us. Beach, pub, the customary crabbing, meeting up with friends, long dog walks in the woods. Just what we needed. 

Isaac is somewhat better, but struggling headache wise, waiting for this sinus surgery. It’s been six months now, and while he’s on the priority list, the latest date we’ve been given is July. His overall attendance at college is down to 50%, partly due to courses of IVs and hospital, but much more so by these damn headaches and associated nausea. We are still hoping/pushing for a sooner date, but know that his surgeon is also - it’s less so about his backlist, but slots in theatre and the whole NHS backlog.

Sending love and hugs to anyone who might need it, I feel like many do right now x x x 

Sisters and trees x