Port accessed. Bloods done. Lung function tested (about the same as last week). Four days in and he is feeling....well, ropey...this is pretty standard, he tends to get more symptomatic before he starts to feel better. He feels generally pants, headachy, has low grade fevers and was violently sick again last night. No idea if these are side effects or his chest infection being disturbed by these killer antibiotics, or just something new. Hoping he will feel better tomorrow and improve enough in the next three days to not have to be admitted for the second week.
It is very, very hard to see him suffering like this - but what makes it bearable is him; his ‘let’s crack on’ attitude, his lack of complaining, his cheeky smile, his ability to vomit and then immediately ask ‘what’s for dinner?’ - I swing from tears, to laughter, to utter sadness that it’s him and not me, to feeling like I might burst with with pride and immense love - a thousand times a day.
It is very, very hard to see him suffering like this - but what makes it bearable is him; his ‘let’s crack on’ attitude, his lack of complaining, his cheeky smile, his ability to vomit and then immediately ask ‘what’s for dinner?’ - I swing from tears, to laughter, to utter sadness that it’s him and not me, to feeling like I might burst with with pride and immense love - a thousand times a day.
To sponsor us for our latest fundraiser, in which I will be walking 67km in a single day (by current training standard, will likely take me 14ish hours) alongside some amazing friends (shout out to my team Holywalkamolies!) raising funds for the CF Trust who fund groundbreaking research into CF treatments, please follow this link. Thank you so much for everyone’s support so far, donations large or small, every penny counts and means so much to us all.
Some say CF is the most curable incurable disease - let’s prove that to be true x
Kandinsky ❤️
