Tuesday 25 April 2017

Flying visit

We are home from a quick admission (DIOS related) where everything went pretty OK. We had hoped his tummy problems were somewhat behind us, as he hasn't been admitted for this in over a year now, but hey ho. He has a CT scan this week, and a DEXA scan and CF clinic next week, so it's still pretty full on CF-styley right now. But the main thing is he is feeling much better. Plus he is dropping three medications (which seem to no longer work for him, at least for now, he may just need a rest from them) and gaining just one new one. It's very rare for us to reduce his prescription list. We really need this one to work (the alternatives are a lot more invasive).... It does sometimes feel like we've patched him up, but only for now. Anyway, it's not all bad being in hospital, we always have some fun too. He is the best company! This time, he was hooked up to an IV line all day, which for a change had some pretty sturdy wheels on it, so he skated down to the concourse on its wheels to a series of funny looks (we both find commotion he causes pretty amusing... yes, sick people have fun too!). He loved making a short film of our day, and here are some stills from that. We are feeling hopeful and happy. Have a great day x