We are still tapering off his steroids. He has the full moon face now, and has a rounder tummy than he has ever had before (he gives an extra comfy huggle now). I guess he will revert to normal slowly when they stop, he is getting a teeny bit self conscious about his face. The question now is if his lung function will drop again off the steroids, and if so, whether he will need the Broncoscopy still. He's also still on all the other extra medication, which includes 4 nebulisers a day, which is pretty full on, but the advantage to being in hospital is that he is being a bit more compliant now; He got used to doing extra work to stay well, and complains less while actually doing more. We're not yet sure if or when he'll stop the extra drugs. We're also waiting on a referral for another issue (will blog about that if and when we know more).
Anyway, those are worries for another day!
Right now, I am focussing on the girly girls, especially Anouk, who has been very fretful since we were on the ward. She is having a hard time, says that she can't even bear me to be an arms length away (...heartbreaking when you are a working Mum, and you have to leave them crying for you...).
But aside from that, we are enjoying autumn, we've have had lovely friends to stay, cold mornings on the rugby pitch, evenings cuddled up on the sofa as a family with the fire lit and the diary is filling up fast for the rest of this year .... Life is pretty good.
Have a great day x
