Wednesday 25 August 2021

Hope for the 10%

Little video clip here about the ongoing work to find a treatment that will work for those, like Isaac, with the rarer CF mutations. It’s been so, so wonderful to hear all the stories of CF peeps benefiting from Trikafta/Kaftrio - it fills my heart with joy and hope. Us next, please! 

Today has been a good day - his chest is settling, the cough receding. He is so much better than he was, and my fluttering heart and funky adrenaline response are slowly falling. My body seems behind my mind by a few days. 

Now, Isaac is looking at starting college. He seems happy. This will be good for him. 

Keep well out there x 

Pintupi artist Wentja Napaltjarri