Sick sick....

The first week of the school holidays, and come with it... a fucking CF exacerbation. 

Coughing. Wheezing. Walking around in a dressing gown, gripping a hot water bottle, in 30 degree heat. Napping. Stairs suddenly feel like a challenge, and huffs with physio sound like they traverse through treacle..... 

This disease holds my son hostage, and I hate it. 

We’re only three weeks clear of his last IVs, I don’t think he’s ever sounded so bad, so quickly. Plus he’s trying to hide how bad he feels as he knows that we go on holiday soon, and he fears another admission. 

We need him better. 

Rothko blue, because I’m blue, and a Miro, because, everyone needs a Miro.