Wednesday 11 July 2018

A squash and a squeeze

For anyone who has read this book, the way the old lady feels when she gets her house back? Sums up how we feel post home IVs...

His daily treatments (tablets, nebulisers, physio) which usually feel half defeating to get done, suddenly feel SO simple after two weeks of very early starts, gloves, aprons, mixing up antibiotics and syringe driver pumps....  So here is to feeling thankful, de-accessed, hardly coughing, and our boy getting his summer fun back on track. 

I’m going to post some FAQ’s soon, about CF. All questions welcome. Have a great day x