Wednesday 11 April 2018

A closer look at his lungs.

Less than two weeks since his IV’s ended, and Isaac is coughing. His consultant rang me at work today to discuss this (she is so brilliant) and has suggested we hold on more antibiotics, and instead do a bronchoscopy to get a better picture of his lung health, and hopefully figure what the hell is going on (they hold on the extra antibiotics now because they want to suction off a mucous sample for the lab, and giving him Cipro now might just mask the problem). 

There are numerous ways in which they piece together a picture of his lungs; lung function tests, exercise tests, chest X-rays, listening to his lungs, sputum samples which they grow in the lab to see what infections he has, how he feels, CT scans, and bronchoscopies (a camera inserted into his lungs, and they flush out secretions with saline while they are down there). Each give a slightly different illustration of what is wrong. As his last bronch was so bad (“one of the worst CF lungs I have ever seen” the doctor said. Still haunts me) we are feeling both apprehensive, but also hopeful that this time, things will be different. Thankfully they can fit him in on Monday, so not long to wait, and it is our favourite consultant performing it this time. Yet another anaesthetic and theatre trip, but hoping this will be a fleeting visit to hospital unlike last time. 

He is not super unwell. He’s just not quite right either. 

In the meantime, have I mentioned lately that I’m throwing myself out of a plane soon? Everyone with CF deserves the chance of a longer, healthier life. Please support our skydiving fundraising by clicking here. Thank you x 

In Bristol. Cousin love 💕 Anouk and Bodhi.