We're having mixed luck on the dry-powder inhalers that he is trialling again, which we hoped would shorten his treatment times. One (TobiPodhaler) he quite likes, but the other (Colobreathe) he can't tolerate again. He alternates months on Tobi/Colomycin to try and trick the bugs a bit, as they work in slightly different ways, so it's likely he will now alternate Tobi podhaler and Promixin through the Ineb (will make sense for my CF friends). So, better than before, but not as good as we had hoped. He also seems happier in himself, and is beginning to take his Creon in school (hallelujah!) so is feeling much better tummy wise. Meeting with ENT next week about his sinus surgery, which can't come soon enough. He's had months now of not being able to breathe through his nose which is a bit poo.
In other news; We had an explosive cistern water leak in which I was sprayed with toilet water for ten whole minutes; our games room is complete - from garage to pool room and the kids love it; we have a new car, like a 'proper grown up car' on which the wing mirrors are not held on with duct tape and body is beautifully dent free - amazing; my best friend is having a baby boy!; and summer is coming...
Have a great day x
