Plan Be.

We spend much time second guessing when Isaac will next be admitted; too much time. Currently we're on Plan Be, as in, what will be will be. He had a good 48 hours of feeling better after weeks of coughing, only to come down with a tummy bug, which has set him right back again. Five days of fevers, and although he is no longer feeling sick, his chest seems worse than before the Cipro - those bugs that camp out in his lungs are opportunistic little bastards. 

The question now is whether we can eek this out until Thursday, when we're due into hospital anyway for his annual review (full day of tests galore), or if we need to take him on sooner. Even Isaac has resigned himself to thinking that he'll need to be admitted, which is not like him. 

For all of us, being admitted is our worst case scenario. Isaac, Dan and I know this as a necessary evil, but it's not so readily accepted by Anouk and Rosa who are too young to completely understand. Even with the most supportive and wonderful extended family in the world, the impact of hospitisation hits wide and hard, in many aspects of our lives. 

I am just back from a short trip to Madrid for work, and for now, I'll leave the suitcase out just in case, awaiting ideas from our fantastic CF team. 

Good night all. More soon x