Friday 3 December 2021

Adulting

My child. Officially in adult care, at age 16. 

First day was exhausting, tests from 8am- 5pm, and then an emotional farewell to our beloved paediatric team when we dropped off presents and IV pumps. Isaac was great - speaking so much more to the new team, and being more honest about the treatments he is less compliant with (a decent amount of physiotherapy, mostly). Lung function was a smidge better. All the other tests (diabetes bloods, CF etc.) we now wait on. 

Our day in pictures... (apologies for the lazy post... more soon). 
Thank you for reading x 


New hospital, new CF ward, private rooms with ensuite. Not so bad. 



Caroline, our CF nurse for the last 16 years, and one of the kindest people I have ever met. 

Same site. New views. 



Doodles galore in hospital. 

Exhausted!