Anti-fungal drugs - underway.
Tummy - unforgiving.
Plan? - transition to adult care and make a new plan.
Next post will likely be an epic ode to our amazing paediatric team, many of whom who have been with us all sixteen years. We are going to miss them immensely, but also know, it is time to move on (sob!). First appointment this week, including tests 8am-5pm, including chest X-ray, CT, glucose testing, lung function, bloods....the lot. Long day, but looking forward to seeing the brand spanking new hospital that will become our new home from home x
PS. And wow, just re-read a post from five years ago, pre-portacath (read here). If anyone is needing but doubting getting a port, we can only say that it’s been miraculous for us. Isaac has so few viable veins for access now, and the ease of starting IVs quickly and easily, is such a huge relief.
