Hey...

Sorry, not posted much of late. I’ve not been feeling quite right for a while now. Most likely my beloved IBS (I hate my own guts) but this week had a gastroscopy and colonoscopy (I mean, why not both ends?). Feel like my internal organs have been through a spin cycle. Or like the consultant played Tetris with my innards. The hospital experience only reminds me further of how much Isaac goes through, again and again, and how well he lives this life. 

He is doing... OKish right now. College is going well, including more walking than he is used to, bus rides, being on his feet in the workshop all day (he is studying joinery and carpentry). He’s missed a couple of days already, which is.... difficult (being such a practical course). His sinuses are giving him jip, and we are chasing up ENT for an appointment, who have a huge pandemic backlog, and then likely surgery (his fifth? I think). This means headaches and nausea. His tummy is not great either, but at least his lungs are behaving well(ish). We are bracing ourselves for a difficult winter of bugs, but he will have his flu vaccine soon, and his COVID booster. 

Anouk and Rosa are doing well. Rosa is completely nuts for ponies, as was I at that age, and is proving to be a gifted rider. Anouk fills the house and garden with all her teeny friends and the laughter echoes through the walls. I wish I could shake off this tiredness, but still, I am soaked in love, and there are much worse things than annoying guts. I dream of their soft skin and giggles. 

Keep well x x x PS: will post soon about a CF Live event, which I will be a part of. Exciting! 

#edit, Isaac came home from college today with a raging fever. Hello autumn. 

Jacek Tofil ❤️