Thursday 1 October 2020

Wishing I had better news

Bacterial chest infection. 
Fungal chest infection. 
Coughing. 
Sinus pain. 
Headaches. 
Vomiting. 
Headaches while coughing or vomiting.... the worst. 

... and now DIOS too (read more about what DIOS is here). And no, it is NOT the same as normal constipation. 

Isaac had an emergency review in hospital today. Abdomen X-ray. Bloods to test for pancreatitis (results pending). 

X-ray confirmed moderate to severe DIOS. They have allowed us one night to treat it at home with 100ml of Gastrograffin (possibly the worst tasting drug ever), lots of rest and fluids. If he is sick again, cannot consume enough fluids, or is still in as much pain, he will be admitted tomorrow for more treatment and IV fluids to help his poor kidneys. If he becomes in any more pain, we head to A&E (as there are risks of intestinal rupture, which really is as fun as it sounds). Isaac is being his usually stoic and wonderful self, laughing about how full of shit he really is (literally). DIOS is not new, he suffered a lot from this a few years back,  which is why we’re allowed to try and treat at home first, but it’s frustrating as we’d hoped it might be an issue of the past. 

Sinus, lungs, digestive system; all separate issues, but undoubtedly each issue impacts his health overall, and consequently, each other. 

We discussed his pain management more generally with his doctor, and agreed that what he ultimately needs is the surgery. They will continue to lean on the ENT team, and we will do the same. He needs the CT first, but they even have a backlog for those (damn COVID). 

We will get him well... but shit, it feels like one thing after another sometimes, and if anyone deserves a break, it is him. 

The next fundraiser plans are coming together... more soon on that x