Symptomatically, living with a constant chest infection can vary very much in CF - unlike healthy folk with a chest infection, he has few fevers, and if you are a regular reader here you will know he plays football, goes to CrossFit, has friends, attends school on a semi regular basis, and has a social life. But when this bug decides to have a little party in his lungs (CF exacerbation) he also spends a lot of time at home or in hospital having IV antibiotic treatment to try and keep this bug at bay. It doesn’t always go to plan. Pseudomonas is like a rude, unruly child - an invador, trespassing on his health. I hate it.
That said, right now, having had flu in the house last week - we’d take an Isaac typical pseudomonas party over that any day - *flu would floor him more than it did me, and likely give his bacterial infections free rein to party all over his precious lungs like never before.
Isaac has had a funny few days, up and down, certainly coughing more, on/off fever. Today he has been sick a few times. I’m terrified he might have flu - but nothing is straightforward in CF. Unpicking what is new (flu?) and what is his norm is not easy.
What is normal is his crazy amazing attitude to just getting on with things - we could all learn from him. More soon x
To support our fundraising for the Cystic Fibrosis Trust who fund seriously groundbreaking research, please click here. CF is actually one of the areas of medicine where a cure is a realistic idea, but they lack the funding to achieve this potential. As such, myself and a bunch of my amazing friends will walking the Great Strides walk in the Surrey Hills in June 19. For me, a bonkers 67km in a single day 😬
* we all have the flu vaccine every year - it only protects you from the predicted top strains that year. Looks like we got unlucky.
