Cipro and sunshine? Really don’t mix. This is OLD NEWS but he learnt the hard way after jumping in and out of a pool all day last week. Hell, he gets a sunburn in winter on that antibiotic! He is so grown-up in many ways.... but we can’t rely on him caring two hoots about his health just yet.
We have more information about CFRD now (CF related diabetes) and it seems he has a very high chance of developing this, and we’re to try and lower his carb intake to delay onset. We have yet to have any advice on how to do this exactly, so will be working with his Dieticians. To add diabetes to his long list of treatments would be, I fear, pretty traumatic for him (regular blood glucose testing and insulin injections a few times a day), but in true Isaac style, he’s not worrying about it until it happens (and currently has no interest in a low carb diet at all!). As well as the added treatment burden, CFRD will negatively impact his lung health, so definitely something we don’t want for him (expletives removed).
His latest bloods also show a rising sensitivity to aspergillos (the flagitious fungus) that he also grew in October last year, and he continues to have heavy growths of PseudomonasA (the bastard bacteria).... all the while I read about the antibiotic crisis in the news (which I have blogged about here) a very real crisis that very few people seem to be talking about.
On the flip side, reading other CF stories, I realise how fortunate we are that he has recovered most of his lung function following his time in ICU - not all are so lucky (and phrases like ‘sudden decline’ continue to chisel away at my mental wellbeing). So like him, I try to live more in the present day, and today.... things are OK. I have a few days off and plan to lay a love bomb on all of my kids in this time. Happy May to you all x
