Dreams of you all through my head

We've had a busy few weeks. Isaac is.... OK. We think. Pretty hard to tell. His tummy troubles rumble on, from one extreme to another. Some days we're all loving cuddles and family closeness. Others it's shouting and angst; all otherwise known as the teenage years. Yep, he's only 12, but he's always been one step ahead of most. We can laugh through most anything, but I'd be lying if I said it never made me cry.

It's never easy to explain, but he ALWAYS has a chest infection. In his case, BPA (Bloody Pseudomonas Auriginosa). But this isn't how you might imagine it. Chest infections in people with CF are rarely associated with fever, like we might have. The BPA set up their little camps in his lungs, and it's only when they decide to have a little party down there (known in CF as an exacerbation) that he gets more symptomatic, but that can come on pretty quickly. Right now, his BPA is revealing itself quite clearly in his sputum lab results (doing a little bug twerk in our faces) but chest wise, he is feeling OK. It's like the lull before the storm. All we can do is extra physio, and have extra antibiotics at the ready. We can't always jump on them straight away, as we can't afford to overuse antibiotics for fear of resistance. 

In the meantime, we're out and about having fun. Please, if you can spare a little, sponsor Isaac for his 5km colour run by clicking on the image of him looking handsome and moody to the right. He is so chuffed with the reponse so far. Have a great day x