Hospital life...

You know when you have settled in to hospital life again when you're in M&S buying sushi for breakfast, in your tea stained pyjamas at 11am, and you don't care. It's freezing outside, but you're in flip flops because the ward is a sweaty 35 degrees all year round. You play chess, Xbox, cards and watch a film, hoping the hours are passing, only to find it's still only 10am. You go to bed at 8pm and stay in bed until 6am, to have 4 whole hours sleep. You have lovely cuddles, pranks, laughter, and then strops and shouting, all within an hour.

That said..... It's all going well. Cannula in (uncomfortable, and in his favoured hand) the first day, long line the next. Went in first time perfectly, on gas and air (which I had to wrestle off him in the end!). This is so much much better for him, he has great movement, and should last the whole 2 weeks. He was so brave. He has a full on routine; 4 lots of IVs. 5 nebulisers. 4 lots of physio. We have been in the gym twice today. On one hand it seems like an endless cycle of treatments, but on the other, time passes so very slowly. He was very happy to see two aunties today, and for us to all eat together as a family tonight. His cousin Ben is visiting tomorrow.

All going well so far, and I couldn't be prouder.

Hoping for good results from the lab and better spirometry results (early next week) when we will know more. Good night all x