Greetings from the South of France.

Clinic went OK. His lung function was down 9%. Not good. Over 10% and they like to action more treatment. Hoping that it was just a bad day, and that we are not heading towards IV's (he starts Secondary school in 2 weeks, so that would be the worst timing). 

Lab results are back and his PseudoA infection is rampant again, despite 3 weeks of extra treatment recently for this (Cipro). Really not good. 

We are away, and have Cipro with us to treat him again, but a side effect of this drug is serious sun sensitivity. He gets burnt in an English Winter on this stuff - so it's not compatible with 30 degree + sunshine in Montpellier. So we have to wait until we get back. Or he gets more symptomatic, in which case we may have to come home early. 

This place is beautiful, and the kids are having a ball. It's so hard sometimes, the balance of life and what is best for his health. 

For now, we will enjoy every day we have here. And hope that the car gets us home when we do leave (it was not a happy bunny on the way here, it took 21 hours with numerous stops to cool engine and add oil galore). 

The good news; Rosa is swimming without buoyancy aids. Anouk is loving French markets and new dresses. I passed my recent exams. We are 17 people here, we eat, we drink, we swim, and listen to Kurt Vile. It's wonderful. 

Bonne nuit et une bonne santé x 

Note to burglars; we have house sitters and an over enthusiastic dog 😜