Flying.

The wonderful Starlight Charity have been so kind as to take us flying, in both a helicopter and small plane. We can't thank them enough; as well as granting Isaac an amazing wish in 2014, they invite us for parties every year too (read here about his wish).

HUGE smiles all round....

To support the truly amazing work Starlight do for seriously ill children please click here.

Also, if you have a minute to spare, and care that desperately ill people will be denied access to precision medicine due to cost, please sign THIS petition. If it were your child/parent/loved one, you would, wouldn't you? 

Isaac continues to be pretty up and down. His tummy pain and nausea are still not great. He's been full of virus too, which never helps, and means that he needs to continue on the extra antibiotics that he's taking right now, all with the hope that the nasty little PseudoA bacteria don't set up further camps in his lungs. Despite all this, he is ever cheerful and always making us laugh. 

Have a great day all x x