You see, what you should never do after being told something might be wrong is GOOGLE. But if I had been tempted I may have found that his last scan, which revealed 'significant delayed emptying and a distended stomach' might be something like 'Gastroparesis'... and if I had read further I may have found that this is otherwise known as 'broken stomach'. Problem is, the symptoms kinda fit... (Stomach aches, vomiting...). Hence the new scan and radioactive breakfast.
He has already started on some treatment for this condition, funnily enough, more antibiotics which coincidently help make your tummy contract, and his appetite really does seem to have picked up since, which is great. The worry that I have is that the recommended diet for someone with a broken stomach is 'low fat, low fibre, low volume'.
Now anyone who knows Isaac will know that he needs a high fat diet (because of his CF he has an inability to break down fats and proteins without medication). And due to his DIOS (an unfortunate complication of CF) he needs more fibre. And because of both of these reasons (and the fact that he is his fathers son) he normally consumes very high volumes (whilst gaining little weight). So you can imagine the worry here.
That said, we take each day as it comes. Today has been a good day. I hope yours has been too x
ps: I got stupidly excited earlier over a new tablet organiser. I am always looking out for new, non-medical looking pill pots (suggestions welcome). Isaac loves anything that can he can discreetly carry his Creon in - he takes about 30-50 per day, with his food, and just finding something to fit in the dozen he needs for a school dinner is difficult. But this is a weekly organiser for his other (21 currently) medications... A bundle of leather bound loveliness. I'll post picture soon for CF friends. It's by Pilbox. It's all labelled in French, but I think that just adds a certain je ne sais quoi! His new medications are 4 times daily, so this will really help.
