Happy to say we squeezed in a five day holiday in the mountainous, beautiful, hot and sometimes smoky (spotted the wild fires before we even landed) Montenegro. With chronic illness, a plan that actually happens is a huge feat. Back home and we are starting IV antibiotics once again. His chest is moaning, the bugs shouting, and we need him well for more sinus surgery next week. Today has been full of fevers and headaches. For all of Isaac’s care and surgery we rely on our amazing NHS; with any surgery he is high risk to anaesthetise so private health care is never an option (even if we could afford it). Again, we navigate a CF team plan for IV treatment from one hospital and his ENT care in another, which always makes for interesting talks with his teams. We make it work, and we are always so very grateful for what we have available to us in the country we live in. Many do not x
Cystic Fibrosis is a life limiting, genetic condition, affecting some 11,000 people in the UK alone. CF sufferers often, as a last resort, need to trade in their damaged CF lungs for the lungs of a generous stranger. To sign up to support organ transplantation, please visit https://www.organdonation.nhs.uk/ and tell your loved ones of your wishes, as even when signed up, the decision becomes theirs after your death. Thank you.
