It is always harder to write without good news.
Even harder when you cannot divulge details of the clinical trials that we are part of due to non-disclosure agreements. I think all that I can say is that… it’s been emotional. A soon as I can write more, I will.
For now, lung function is down and we will concentrate on getting him well. I can’t lie; without advances in research, we have no option but to treat only the symptoms of this disease, which is progressive, shitty and cruel. He’s currently being scheduled for yet more sinus surgery too (we have lost count now), another hurdle.
And so, again, I throw myself into the fight once again; the only way I know to keep going and feel proactive. I’m doing a few things, but my favourite by far is the Jurassic coast trek with my core crew coming up in July. This will be a challenging trek, likely taking us 10+ hours, over a single day. Type2 fun we like to call it! If you can support, in any small way, it will be so much appreciated by us, and of course, the Trust and the whole CF community that they support so fantastically.
Training pics below. Love you my ladies, more than you will ever know x x x
Our Jurassic Coast trek will take place on July 19th for which you can sponsor us here.
