Lovely little film of hope, for those, like Isaac, in the last 10% of CF sufferers who still have no treatment options for the underlying cause of their disease. Hope is everything.
Isaac is doing really well. IVs ended tonight. His chest is blissfully clearer. His port site is sore and his scar, growing, but he is pain and needle free now. Clinic tomorrow and more tests, but we’re hopeful for a well Christmas break. He needs this.
Last week my tremendous friends at CUP&A helped me raise a further £3,400 for the CF Trust, to be invested into support for people with CF and vital research, much like that featured in the short film above. We need this.
Huge thanks to everyone who helped organise this fundraiser, it is no small feat each year. Special love to Heather, Richard and Paul, for their never ending support. And of course, to all those who donated so generously.
Wishing you all a beautiful winter break, wherever and however you spend it. Love, love, love x
