Friday, 26 June 2020

Being well

To support the incredible work that the CF Trust do, both in terms of funding ground breaking medical research, and supporting people with CF, and for a chance to win some cash, please enter this raffle - you can play online, and it takes two minutes, really. Top prize is £2,000. 


It has been a long time since Isaac has been so well, for so long...

Although his cough is now increasing and his huff is fruity, his last IVs were in March, so this is a very good run for him. Our community nurses have told us they see the same with many of their patients - shielding from CV is naturally also protecting him from the usual barrage of other viral bugs (which make his bacterial infections think they can have a pretty rave in his lungs). Day by day, his lungs are sounding worse though, meaning we will need to brave hospital soon, but we have escaped the higher risk period, and for that, we are super thankful. 

On his first day trip out of the house: Norfolk, June 2020. Despite being sick on the way down, he still managed to piggy back little Rosa on the long walk to the beach, and give his shoes up for Anouk, who had blisters. The fact that he soldiers on and never complains constantly amazes me 🥰

Happy 8th birthday our little Rosa 🌹 

Keep well x