While away, he is on physio, tablets and inhalers only, as agreed with his doctors. They were keen he take only what they could trust him to do independently, rather than send all the nebuliser drugs, chargers, part and machines that he might not do, and would need sterilising, that he could not easily do. He has back up antibiotics if he becomes less well to hand, and a whole load of sun block to put on for the side effects of his anti-fungals which make him uber photosensitive. His lips continue to crack and bleed on this toxic drug too. That aside, he left feeling good right now (at least, Isaac good).
I on the other hand feel anxious. The logical 5% of my brain tells me it’s just a few days! He is fine! He can call! If he comes home less well, we can just increase physio! I’m being neurotic! Unfortunately for me 95% of my brain is made up of irrational fear, love and anxiety when it comes to Isaac. I have spent 15 years now, in utero and beyond, trying everything to keep him well. It’s hard to start to let go and trust him to take up the reins.
But it will be worth it - what an amazing chance, an opportunity we would not want him to miss (but that we would like to see him home well from after) x
