Happiness, flu jabs and another loss.

Clinic was pretty frickin positive...! LF was down slightly, but still bettter than it has been most of this year. For now we try extra oral antibiotics (a new one), a new steroid inhaler, and picking up his nasal rinses again (problems with his polyps/sinuses may be contributing to this). So no steroids, and no immediate IVs, for which we are very, very happy. 

It’s flu jab time of year again, and we will be first in the queue. Please remember, if you can get vaccinated, you’re defending not only yourself, but also reducing the spread of the virus and protecting those more vulnerable around you. (note: you cannot ‘catch flu’ from a vaccine, it’s not live, and these days, you can often choose between a nasal spray and the jab). 

Do this. 

Give blood. 

Sign up for organ donation and make your family aware of your wishes. 

At least that’s what I think, but who I am to say?

"Life isn't about being happy, life is a roller coaster of crazy emotions. One second you're fine, and the next second you feel lonely and despair and like nothing is ever going to be okay again. It's not about emotions, it's not about how you feel second to second. It's about what you're making with your life, and whether you can find a deep pride in who you are and what you've given. Because that is so much more impactful, so much deeper than whether you're happy or content or joyful. It's okay to feel pain." - 

- Claire Wineland, an insanely uplifting and beautiful person, who died this month, following CF post transplant complications. This disease is so fucking cruel. Everyone should watch this. x