The kids are back to school, but already Isaac is coming home sick. Yesterday was not a good day. Today, Rosa was sent home after spontaneous vomiting in class too. This time of year is often not good for us. A new round of viruses to pick up and pass round the family. At the moment I'm hopeful that we can stay home and send in samples to the lab, which they grow to show any new or rampant bugs. All being well we stay home and put off CF clinic longer. He has had too many rounds of Cipro (the most powerful oral antibiotic that his bugs are sensitive to) this year to begin another so soon after IVs. Although he has other daily oral and nebuliser antibots, we have to reserve Cipro to occasional use on top of these, else his bugs will fast develop cunning ways to overcome it. He is still waiting on a date for his nasal surgery (which will involve removing CF related polyps he has grown, and widening his airways.... not nice, but very necessary) but his consultant is on the case. It's likely he will have more IVs at the time too, as the surgery and associated aneastetic will leave him open to infection rampage. I don't want to say the 'C' word in September, but I bloody hope it's well before that busy season, and we have him well and home for the holidays.
The other night, unwell in bed in the early hours, he said 'Why me?'.
It's times like those where I feel so helpless.
And so I try and turn that helplessness round and start thinking about my next fundraiser..... core team (you know who you all are!)... anyone up for a skydive?
