Flying.

The wonderful Starlight Charity have been so kind as to take us flying, in both a helicopter and small plane. We can't thank them enough; as well as granting Isaac an amazing wish in 2014, they invite us for parties every year too (read here about his wish).

HUGE smiles all round....

To support the truly amazing work Starlight do for seriously ill children please click here.

Also, if you have a minute to spare, and care that desperately ill people will be denied access to precision medicine due to cost, please sign THIS petition. If it were your child/parent/loved one, you would, wouldn't you? 

Isaac continues to be pretty up and down. His tummy pain and nausea are still not great. He's been full of virus too, which never helps, and means that he needs to continue on the extra antibiotics that he's taking right now, all with the hope that the nasty little PseudoA bacteria don't set up further camps in his lungs. Despite all this, he is ever cheerful and always making us laugh. 

Have a great day all x x 

Holy fuck balls.

Apologies Mum for the swearing, but I know you share the sentiment. 

Are we ever stronger apart than together? 

European to my core. Love love love x 

I'm so far in the remain camp I just found myself coming out the other end....

...the lovely Madrid, where I have been for work (It's a hard life sometimes). I don't really understand why others wouldn't want to be part of this European Union, it's so fascinating, wonderfully multi-cultural, and beautiful. It was a fantastic trip with some very good company. I am still smiling. Leaving the EU would affect us in immeasurable ways. Interesting little article here, for example. It's not too late to vote yet people! I for one am thankful to be part of the EU and have so many friends from all over Europe whom I might not have known otherwise. 

Good night x

Unwanted visitors.

PseudoA are rearing their ugly little heads from the small camps they have set up in his lungs yet again. Command and conquer they will not. Little shits. 

Thanks to a fantastic CF team, hospital labs and pharmacy, a few emails, lots of calls from work, a fab sister in law who went in to pick up the drugs from hospital for us; tonight we have a plan, Cipro and Tobramycin (to mix it up from the Colomycin nebs which the bugs seem to be escaping right now) plus a new regime for his tummy to try, involving emergency Gastrograffin and more Picolax.... All without even seeing a doctor. This is modern medicine people! 

All in a day's work. Fingers crossed it works x 

Pictures of the summit, the Brecon Beacons.

Trekfest.

We made it. It's been emotional. The bottom line is; I have such amazing friends.... 

In no particular order, huge thank you's to my sister Jo, who always joins me on these mad adventures and more, and Jo Elliot who walked through the pain to make it with her. Lemon and Jess who completed the 25km in an amazing time. Bon, who couldn't walk this time but has before, and was the glue that held us together. The gorgeous Sarah Cater Skater who walked over the finishing line with me despite the worst blisters all over the soles of her feet. Jane who kept the conversation going for those last few painful hours and never complained. Erika who also climbed the Yorkshire 3 Peaks with Jo and I previously and whose feet I couldn't even look at the next day for cringing, and her friends Tammy and Sarah who also finished the 50km. Tammy, was so good to meet you. Sarah, sorry we never caught you up! 

We finished the 50km at 10pm after 12.5 hours of walking. The climb to the summit was incredibly hard, as was the steep climb down on our feet, but the views were amazing (sorry the English and Scots, but Wales wins in my opinion!) and the company even better. The weather was very kind to us; 18 and cloudy on the day of the walk, and hot and sunny for our day of celebrations the next day. Little Anouk joined us for the weekend which made a lovely change. She misses me terribly when I'm away with Isaac, so was a treat for her, and me. 

I thought a lot about Jayne up there. Tim and Adam, if you are reading, love love love. 

Isaac was ill most of the weekend too, a timely reminder of why we were doing this. I am glad to be home with him now, my soldier. He goes through so much and complains so little (how many of us can say the same?). 

And so I feel happy, and sad, and proud, and lucky, and tired... And hopeful. We have now raised over £52,000 for the CF Trust since Isaac was born thanks to this and other things we and our wider family and friends have taken on. This can and will make a difference. I have to believe that. 

Thank you for your support. For our amazing family and friends who donate again and again, it means so much to us. You mean so much to us. 

Here are some pictures from our weekend x 

I will never stack a dishwasher in the same way again (at least not without laughing). I'm still waking up in the night snorting with giggles! 

PS; still not too late to sponsor us, see link below in blog x 

BLISTEROILS!!!! 

This kind of shnizzle

In three days time a group of lovely ladies will be walking 50km over the Brecon Beacons with me in aid of CF. I'd love to come back to find that we have made our target. To support us you can sponsor us here. We're so nearly there. Thank you so much for the support so far.

Some half termly observations;

'Do as I say, not as I do' is not an effective parenting option.
Feisty three years old can be even harder than teens to reason with. Who knew?
Indoor surfing is a thing. And it's blimin fantastic!

All children at the age of eleven inexplicably come into possession of a machine-scatter-gun with which they load dirty clothes, wrappers and football cards, sit on a bucking bronco and fire repeatedly around their bedroom. 

People actually have business meetings in which they say things like 'conversate' and 'getting ducks in a row' in a non ironic way.  

The mountainous range we will be covering on Saturday is over 3500ft and includes 'Fanny Big'. I kid you not 😉

Good night all x