Wednesday 15 July 2015

DIOS... Again. Back in hospital? Maybe.

Isaac has this (sorry for the wiki quoting, but kind of sick of people comparing this to normal constipation. It is not!)


Distal intestinal obstruction syndrome (DIOS) involves blockage of the intestines by thickenedstool and occurs in individuals with cystic fibrosis. DIOS was previously known as meconium ileus equivalent, a name which highlights its similarity to the intestinal obstruction seen in newborn infants with cystic fibrosis. DIOS tends to occur in older individuals with pancreatic insufficiency. Individuals with DIOS may be predisposed to constipationFeatures; Symptoms of DIOS include crampy abdominal painvomiting, and a palpable mass in the abdomen. X-rays of the abdomen may reveal stool in the colon and air-fluid levels in the small bowelManagement; Surgery is often required to relieve the obstruction. However, if there is no sign of bowel rupture, a more conservative approach may be attempted. Restricting oral intake, placement of a nasogastric tube for decompression of the stomach and proximal intestines, and administration of laxatives and enemas may resolve the obstruction without the need for surgery. Individuals prone to DIOS tend to be at risk for repeated episodes and often require maintenance therapy with pancreatic enzyme replacement and stool softeners and administration of laxatives and enemas may resolve the obstruction without the need for surgery. Individuals prone to DIOS tend to be at risk for repeated episodes and often require maintenance therapy with pancreatic enzyme replacement and stool softeners.



There were no beds on the ward, so we're home, with some meds, but may be back on the ward tomorrow if he is no better/they have room for us. 

Need to add, we have the most wonderful CF team. Especially our fantastic CF nurse Caroline, who we caught on her way home, having just been told that the pharmacy could not prescribe us the drugs he needed. She went out of her way and spent the best part of an hour sorting us out, as everyone else went home. We can't thank them all enough. 

Thanks also to Jin, for listening to me moaning today, and my work colleagues who didn't mind Isaac sitting in the office for a bit while we waited for his doctors to call (that's a first!). 

After that I reversed into a large post and scratched all the back of the car. 

And worse, the best Mum in the world is also in hospital overnight with a bad knee, and I can't even go and help her as I need to be here. 

Today can just piss off (sorry for the language Mum) x