CF myths

There are many reasons why I started this blog. Most importantly I guess, I find writing things down clears them from my head. Or at least tidies them up. I also want to share how we are all doing with family and friends. It's really hard keeping up with who I have told what to, and when we are in hospital, or awaiting test results, this could be a central place to update all, which would be kinda handy. Most of the time talking helps. Sometimes it doesn't. After a day in hospital it's the last thing I want to do (a few days later I am back to yakking away to anyone who will listen!). Then there is CF awareness and fundraising, which mean a huge amount to us. We are super optimistic about the future, and really think research happening now is going to make a huge difference to our future. We are already proud recipients of so many advances in CF care, just in the last few years. And awareness is hugely important too. If there was more understanding about CF, and how it affects him, then his life would be so much easier in future. So in future blogs I will be dispelling a few CF myths, and confirming some CF truths.