A blog about Cystic Fibrosis, promoting organ donation, family, love, art, drinking too much tea (and quite possibly gin).
Monday, 14 June 2021
Saturday, 5 June 2021
Buckets of freckles.
Isaac is doing super well. Latest DIOS episode resolved, and the Cipro, which rarely works for him these days (often only delaying IVs) seems to have worked its old magic. His chest sounds good, and he was able to enjoy a luscious family and friends camping trip, swimming in the river for hours. Like me, he looks like he’s had a bucket of freckles thrown at him.
With his LAST EVER day of secondary school behind him, he is free for the summer. Immensely hoping he gets to enjoy this special teeny time and CF effs off and allows him this.
Have a great day x
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