Here comes the sun

Life is pretty sweet right now. Rosa is tucked up in bed. Isaac and Anouk are playing on the trampoline enjoying the evening sun. Those two can be pretty terrible together at times. Whilst they both dote on little Rosa, just the two of them and they become, if I'm honest; a bit of a bully and a whining tell tale. But lately they have been getting on better... Maybe, just maybe they will become better friends. 

Kids are all well. Obie is mad, funny, lovely and infuriating all at once. Work is going well, and right now I'm feeling immensely grateful to have a job at all (cuts, and friends I will miss). Dan is busy too, and has also just finished laying our new parquet flooring. Get us eh! Love it. Love him. 

Him and Isaac at off on a rugby tour soon, we have a holiday in Wales, weekends in Norfolk, Cinematic Orchestra for my birthday as well as Rosa's 3rd, summer parties, BBQ's and a wedding to look forward to.... 

Life may have thrown us a few lemons, but we're sure mixing them up with vodka. 

The sunshine of my life

And so the sun arrives, and with it, some hope. Isaac is doing great right now. Back to a normal routine; normal for us at least. Back to 4 nebs a day, base physio. His chest has been great, and his tummy better. Girls continue to be absolutely gorgeous, growing up fast. I find myself telling people at work that I have a ten, six and two year old, and yet I still can't believe I really do (I'm still a big kid myself at heart). Still waiting for news on the Ataluren trial. You prepare yourself for long and frustrating waits when it come to health, but it never gets easier. Fortunately for us, it's frustrating as we're excited, not frustrating because we need this, and we need it NOW. Long may this continue. 

So for us, spring is lush, and green and wonderful.... Although my thoughts are also with Jayne, still awaiting new lungs, a friend at work, affected by CF also, and a teeny tiny baby born yesterday. Be strong little guy! Let spring be good for all. 

Have a great day.