My Merry Moly World

I’m not quite sure how to explain these last few weeks.  Ahead of planned sinus surgery, Isaac started IV antibiotics again. Partly because ...

Happy to say we squeezed in a five day holiday in the mountainous, beautiful, hot and sometimes smoky (spotted the wild fires before we eve...

This was a phrase much used on late Saturday night and Sunday in our cute little cottage near the Jurassic Coast. Sometimes in wonder, some ...

Lots has been happening lately. We are talking to our team about new clinical trial options. Hope is everything.  Sorry - it’s tricky as we ...

Things are pretty groovy right now.  Our amazing Anouk is  calmly thriving during her GCSE exams  - this girl will go far, and always full o...

It is always harder to write without good news.  Even harder when you cannot divulge details of the clinical trials that we are part of due ...

Exciting news! For us at least. We have planned our next fundraising trek which will take place on July 19th and you can read more about  he...

Oh my bananas, I cannot tell you how many times we have got this so wrong. Coughing until he is sick, and then LF is stable? Feeling really ...

I realise that writing might be deeply unfashionable these days, I should be offering bite sized chunks of content plastered all over social...

This week Isaac wisely decided that he needed IV antibiotics, and that he wanted them now to be well for Christmas. We had a call with his c...

We started this project in January this year, with proper ground work starting in April (mudfest). A separate space for Isaac (and pup Remy)...

Dare to dream?  watch here  x  Our girls, our boy. Feeling frickin lucky x

Isaac hasn’t been feeling well for a while now. We’re in contact with his CF team often, and hope for some test results next week. He is str...

Isaac is stable. IV’s seem to have done their bug massacring trick, for now. A fight we never truly win. We are still waiting on test result...