Today’s headline: CF sucks, but CF + it’s many implications + additional chronic illness, sucks even more. The impact of new diagnoses on our souls, new symptoms and new treatments and the myriad of overlapping effects this means further amplifies our need to live in peace with ambiguity and the need to take each day as it comes. I am trying.
We have one positive; a new clinical trial to focus on, hopefully in the next month or so. That, we so need. As ever, he is my hero, and increasingly takes the lead in every way, making our team stronger. At home, our funny, bright and beautiful girls and kooky dogs make everything seem brighter for us and nature helps ground me further. More soon x
