Isaac’s cough continued. We gave the Cipro a few more days, to see if it just needed a little more time. On the downside, his chest sounds wet, and his huff, crackly. But on the plus side, his lung function is stable, and most importantly, he feels well in himself. So to bide us some time, and see if we can clear this cough without more IVs, he has started a mega dose of the dreaded steroids. Dreaded because they can affect his mood, his appetite (ludicrously so) and face (look up moon face). Also because once he is on such a large dose (40mg) we can’t just stop them suddenly, we need to gradually taper the dose back down to nothing over time. There are many other side effects too, so they don’t put him on them lightly. But all that said, they work, so ho ho ho.
Christmas holidays has bought with it our annual dose of bugs. The girls have both been ill - but forever looking for silver linings, we’ve had a lovely couple of days on the sofa watching films with our little fevering and sleepy roast potatoes, and we hope to have the bugs out the way before a big New Years party (this years theme; pub names).
To everyone who reads this blog; helps me to spread CF and organ donation awareness; supports our fundraising: thank you so much. We wish you all a fabulous break, and an even better new year x
My present to you, a genuine, award winning photograph, showing two mice seemingly wrestling at a tube station.
BEST THING EVER!
