Cheers!

I haven't updated about Isaac's health properly for a while. Thank you to everyone who asks after him, it's always nice to know people care, or at least that I'm not boring you all senseless with this blog!  

His lung function is stable - not fantastic, but definitely not awful at all either. 

Still waiting on a date for his surgery. He can't remember what it feels like to breathe through his nose. Bloody polyps. 

He is currently on extra oral antibiotics (three different antibiotics, rather than his usual two), for his usual pseudomonas infection. However he is really well right now - we're doing this just to give him a little boost before he goes away on school camp. 

On school camp he will not do his nebulisers. This is wonderful for him (think bulky machines, having to sterilise neb parts, needing electric (on a camp site), and having to do these treatments with his new friends present five times a day). But still worrying for me.... he has been on regular nebulised drugs since he was 18 months old. BUT, his team is supportive, and the extra exercise he will get there, and the extra oral meds will provide extra cover. This is his first time away without me or Dan. Eek. 

His tummy continues to give him jipp. It's mostly manageable at home. But he is missing too much school. His attendance is around 80% this academic year, which is slightly up on the year before. We're in talks with school now to see if he can drop a non-core subject in year 8. This would give him time to catch up/do homework in school time. The school are really supportive of the idea (which came from a CF parent friend of mine - thank you G!). I hate that he struggles so, and after treatments at home, sometimes the last thing you want to ask him to do is catch up work... So we're feeling positive about this change. 

We've been out and about having fun at the coast, canoeing on the river, BBQ's galore, sitting in the garden so late that the mozzies have a field day on my legs..... Everything is sunny groovy. Have a great summer people! x 

Handsome Obie. 

Trying out some new, and pretty effective, parenting techniques with the pre-teen. I can recommend certain types of tape. 

Rosa. Looking like butter wouldn't melt... don't be fooled! 

Lovely Anouk! 

Now 8, 5 and 12. How did that happen?