This is our messy meds cupboard (we have another for the equipment and IV stuff). A lot of stuff, and along with his inhalers, Picolax suspensions, nebuliser drugs, Creon and supplements, he takes 19 other tablets a day right now. It's a full time job for us, his CF nurses and our pharmacist to keep us in stock;
But this leather bound bundle of loveliness, a weekly 'Pilbox' organiser, is about to make things much better;
We can fit in all the tablets he needs for the day, over 4 compartments. The modules all slide out of the case, so can be used individually for on the go;
No room for Creon as well, as he takes 30-50 a day, depending on how much he eats, so we got an individual case too. Managed to squeeze in 32 capsules into this, so not enough for a whole day, but great for school lunches and shorter days out;
To serve his drugs we always use little bamboo bowls, easy to clean and scoop stuff out of;
We have loads of these and they're usually found all over the house. He also likes metal screw up pill pots, which he attaches to his trousers for school and help with discrete Creon popping;
Kinda cool for boys (be warned, you can buy these super cheap online, but some are very small, so won't fit in enough capsules for a CFer). I'd love to hear from others how they manage and present their meds. I am an organisational geek! Sorting out the week ahead in one go will save us so much time, and we'll better see when we're low on something. Plus it's something Isaac won't mind carrying round with him. Really pleased with it, it's so hard to find things like this that don't look and smell purely medical.
....It's been the one highlight in a not so great week - he is back to daily vomiting. Boo.
Please, if you can, sponsor me HERE for a 50km (most likely 12-14 hours) trek over the Brecon Beacons in June. Training has commenced with vigour! In aid of the CF Trust. Have a great day x
