Isaac update

Things continue to be very up and down. A lot of throwing up and laying down to be specific. But whilst he has bouts of pain and nausea, in between he is not feeling 'ill', if that makes sense. So if he can get past the feeling sick, and keep down a meal, he can still do things (he went to football training mid week, and tonight has gone swimming). But he only managed two days at school this week. It's really that up and down. When he does feel well enough, we have to seize the opportunity to enjoy what he can. 

We headed into clinic yesterday, and it looked likely that we were heading for another admission, but have been given a reprieve for the weekend. Halla-bloody-Luyah.... It's Anouk's birthday weekend, so very glad that we didn't have to change plans and disappoint her. Instead we are going in early next week and he'll have a CT scan to see if we can find out what the hell is going on in his innards. He has lost 3kg in these last few weeks. These tummy issues, DIOS related as far as we can guess, have been going on for months now, but this lack of appetite and daily vomiting is new. Isaac can tuck away twice his body weight in food on a good day normally, whereas now his appetite is so hit and miss. For this reason alone, we know something is not right. 

So for now, feeling frustrated and sad that he still feels like this, but hopeful that we will know more soon and get him sorted out, and as always, feeling hugely proud - he complains so little, and takes it all on the chin. He literally picks himself back up off the bathroom floor and gets on with his day.... How many 'well' people could do the same? I'm sure I couldn't. 

And finally, Happy Birthday to our beautiful funny dancing Anouk-a-Shnuk. 7 today! I love her I love her I love her I love her I love her x x x