More soon. And in the meantime, have a lovely summer, and please do add comments/send me questions if you want. I love to hear from everyone x
A blog about Cystic Fibrosis, promoting organ donation, family, love, art, drinking too much tea (and quite possibly gin).
Wednesday, 5 August 2015
Feeling better
It's been a bit up and down of late. But he IS feeling better. And I am feeling much more positive again. He did not have tonsillitis, but he is growing pseudoA again (nasty little CF bug) which explains the cough. He is improving again on some extra oral antibiotics (for now). Also, we hope to hear more news on the Ataluren clinical trial this week, which I'm excited about. More hospital next week. Hoping the DIOS problems of late are behind us (but not completely convinced).