And so the sun arrives, and with it, some hope. Isaac is doing great right now. Back to a normal routine; normal for us at least. Back to 4 nebs a day, base physio. His chest has been great, and his tummy better. Girls continue to be absolutely gorgeous, growing up fast. I find myself telling people at work that I have a ten, six and two year old, and yet I still can't believe I really do (I'm still a big kid myself at heart). Still waiting for news on the Ataluren trial. You prepare yourself for long and frustrating waits when it come to health, but it never gets easier. Fortunately for us, it's frustrating as we're excited, not frustrating because we need this, and we need it NOW. Long may this continue.
So for us, spring is lush, and green and wonderful.... Although my thoughts are also with Jayne, still awaiting new lungs, a friend at work, affected by CF also, and a teeny tiny baby born yesterday. Be strong little guy! Let spring be good for all.
Have a great day.
