I am trying to resist the urge to say that it is just one thing after another right now. Clearly I have failed. I also tried to resist the urge for vodka tonight, and this too failed.
Yesterday his line came out, and the IV's are no more. It's great to get the time back as well as the full use of his bruised and punctured arm. Mixing up the drugs when pharmacy had mistakenly given me 5ml ampules of sodium chloride when we needed 50ml for his Tobi took too long (Being uber sterile means numerous gloves, aprons, needles, syringes, bungs, meds, sharps bins.... The house looks like a dispensary). We get home, he goes straight out on his bike, only to wobble back to me with his chain cog thingy having taken a lump out of his leg. Straight to the doctors for a clean up and steri strips to hold him back together. No tears. It really was quite a chunk - my boy is either mad or very very brave!
Clinic was OK. We are continuing with the steroids (which have him up and down and everywhere in between) and the hypertonic saline nebs for now. Hoping that the HS might be the reason he still sounds pretty fruity. It would be so good to have a little break from his cough after the truck loads of medication that they are throwing at him, but no (he doesn't cough all the time, mostly with physio right now, so not so bad). Lung function is a little down from last week, but not dramatically so, and that might be down to the steroids working to reduce his inflammation and therefore allowing him to cough up more gunk, which in turn affects his ability to do the tests well. There is still a broncoscopy looming if his chest doesn't dry up soon, but I'll worry about that another day.
He is also being referred to specialists for two other issues that may or may not be issues at all. I'm not quite ready to talk about this yet, need to get my head around it first*.
Get home to find that a regular job that Dan and a good friend of ours have been doing for one company for quite a few months now is over, just like that. He is a self employed builder, so it's not his sole job, but it was a good, regular income, and one that he has turned down other work to do. Now it means a last minute scramble for more work, leaving our income, more.... uncertain. Not great timing.
On the otherhand, Isaac was on great form all day yesterday at the hospital, and we have laughed so much. Rosa did her first number two on the toilet, and black permanent marker does wash out of blonde hair (oh the joys of being a parent), and my Mum managed to fix the big lump of hair that I cut out when I decided I could possibly maybe trim the back of my (short still) hair myself. And it's good to be back at work, school, and some normality. Now time to plan some autumn fun (I love autumn). So lots of Moly merriness too. We're not quite OK, but we're getting there.
Have a great day x
*I do always check with Isaac that he is happy for me to blog about his health before doing so. He is old enough to know what he would like known and what he would not, and I absolutely respect that. He absolutely never has a smelly bottom for example. Never.
